..Life With Zoe..: It Is A Sunny Day

Thursday, July 28

It Is A Sunny Day

Zoe is doing fantastic today! When we arrived to visit she was wide awake and very content. We talked to her and tickled her belly, cherishing these moments when she is happy and alert.

Happy at 3 Weeks and 3 Days!

Zoe had a sprint before we showed up and apparently she did very well lasting almost an hour. She was only to do 30 minutes but they kept her going since it was so good. We are just so happy! We hope this trend continues from here on out. They took another x-ray this morning, but I haven't heard how it was compared to yesterday. I am assuming there is improvement with how she is dealing today. On another positive note they lowered her Ativan. She is on a drip of Lasix and we hope she rids herself of the edema quickly.

Yesterday Zoe's doctor took quite a bit of time to listen to her lungs and could tell that she was taking breaths but the vent was not responding. She popped up her PEEP and that seemed to make all the difference. She has so much gunk and fluids in her lungs she was constantly working to get air, which was wasting all her energy before actually doing sprints. Zoe did another sprint a few hours later which started off good but within 5 minutes she showed signs of struggle and we called it quits. The team decided to let her rest for the evening. Well, that seemed to be the best call.

5 comments:

~C~Thursday, July 28, 2011
I'm so glad you guys had such a great day with Zoe! Hope her sprint sessions continue to improve.
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MVThursday, July 28, 2011
Yay for a great day hon. You and sweet Zoe continue to be in my thoughts. Much love to you!
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Mrs.EmmaLouiseThursday, July 28, 2011
I'm so glad she is doing so well! Still sending lots of T&Ps your way :)
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NicoleThursday, July 28, 2011
So glad she's doing well! We'll continue to send prayers : )
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JennyFriday, July 29, 2011
so happy to hear things are moving along! :)
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Miracles Do Happen

After years of struggling with trying to conceive, pregnancy loss, infertility, countless day of heartbreak and tears... we learned we were expecting twins August 1, 2011. We thought this would be a perfect story ending, but that was not the case...

Our journey to be parents took us down another road of struggles and battles. On March 1, 2011, at 18 weeks pregnant, Zoe was diagnosed with Hypoplastic Left Heart Syndrome and Dylan with Down Syndrome and Esophageal Atresia. This was absolutely crushing and left us with wondering if there was any hope for a positive future with our children.

On March 25, 2011, at 21 weeks 4 days pregnant, we lost our sweet little boy. Our hearts were broken but we still had to fight for Zoe. I was unexpectedly admitted to the hospital with preterm labor on April 28, 2011. After countless days of trying to stop labor, Dylan was born peacefully sleeping on May 5, 2011 at 2:21 am.

That same morning I was sent to surgery to save Zoe from making a debut. We became a popular miracle at the hospital as labor stopped and Zoe continued to thrive. At 34 weeks pregnant and 8 very long weeks of hospital bed rest I was finally allowed to return home. This lasted exactly two blissful weeks.

Zoe decided to make a statement of her strength and was born on July 4, 2011. She arrived in this world like a little firecracker ready to battle for her life. At just seven days old on July 11, 2011, Zoe underwent her first open heart surgery, the Norwood, under the care of Dr Starnes at CHLA. After almost eight weeks of ups and downs she was discharged on August 25, 2011 to go home. We spend the next four months loving every moment as she continued to thrive and beat all odds.

On January 19, 2011, at just over six months old, Zoe underwent her second stage surgery, the Glenn procedure, again under the care of Dr. Starnes at CHLA. She had a spectacular and speedy recovery of just six days and home on the seventh day. What we hope to be Zoe's final surgery, the Fontan shouldn't be for a couple of years.

Graduating from "interstage" is wonderful and we now have a taste of what "normal" life is like. We cherish very moment with our daughter and are thankful that she is a part of our lives. Her smiles brighten our days, her giggles warm our hearts. Her half of a heart is more whole then we ever imagined.

This is our journey to mend her broken heart.

..Life With Zoe..

Finding courage and hope to mend half a heart

Thursday, July 28

It Is A Sunny Day

5 comments:

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